Information for parents and carers

Information for parents and carers
Respiratory Department
HOME OXYGEN THERAPY
Information for parents and carers
Introduction
Dear Parents and Carers
I am the Oxygen Nurse Practitioner and I work at Alder Hey Children’s NHS Foundation Trust.
This manual gives you information about taking your child home on oxygen. I will discuss the
oxygen equipment, oxygen safety and my role in caring for your child in the community.
You may feel very anxious about taking your child home on oxygen. Please be reassured that
although the equipment and oxygen safety information sound complicated, it isn’t, and once
installed the equipment is very easy to use.
My contact details are:
Carol Lawrence
Oxygen Nurse Practitioner
Tel: 0151 252 5625
Monday to Friday 9-5pm
Liverpool Women’s Hospital
If your child is born prematurely and discharged home from Liverpool Women’s Hospital requiring
oxygen therapy, their consultant will be Dr Sinha, Consultant in Paediatric Respiratory Care.
Alder Hey Children’s NHS Foundation Trust
If your child is discharged home from Alder Hey Children’s Hospital requiring oxygen therapy,
their Respiratory Consultant will either be Dr Halfhide, Dr Mayell, Dr Sinha, Dr McNamara, Dr
Semple, Dr Southern or Dr Thursfield
2
Contents
Page

Air Liquide
4-6

Nasal Cannula / Spec’s
7–8

Oxygen Safety

Alder Hey Children’s Hospital information (Clinic Appointments)
10

What to do in an emergency
11

Insurance Companies / Fire Service / Electricity Company
12 – 13

Allowances
14 – 15

Stopping Supplemental Oxygen
16 – 17

Holidays
18

‘Things To Do’ List’
19

Contact address / telephone numbers
20
9
3
Air Liquide
In Merseyside, home oxygen equipment is provided by a company called ‘Air Liquide’. They are the
oxygen company who provide oxygen equipment throughout the North West, East Midlands and
London.
The aim of the company is to provide a good quality home oxygen service for patients, oxygen
holiday provision across the UK and to constantly monitor safety measures and service development.
AIR LIQUIDE Homecare Helpline
0808 143 9992
24/7 Freephone
Home Oxygen Equipment
Air Liquide have a variety of different oxygen equipment available. For further information, please
refer to Air Liquide booklet:
‘Home Oxygen Paediatric User Guide’
You will receive this booklet when the Air Liquide engineer visits your home to install the equipment.
Air Liquide will:

Install oxygen equipment within three working days (next day delivery if a hospital
discharge) of the order being placed.

Provide an emergency backup cylinder to your home (if using an oxygen concentrator).

In the event of a concentrator machine breakdown they provide an emergency call out
service and guarantee to be at your home within eight hours of the call out.
4

Reimburse your electricity costs (if using an oxygen concentrator).

Inform the fire service that oxygen equipment has been installed at a patients address.

Provide nasal cannula, oxygen tubing, face mask etc.

Provide a carrybag for portable oxygen cylinders.
You will be asked to sign a consent form (step 1) and then your Respiratory Team can complete a
‘Home Oxygen Order Form’ (HOOF) (step 2). Air Liquide will contact you by phone to arrange
installation (step 3).
Step 1
Sign a consent form
allowing your child’s
information (name /
DOB/ address/
diagnosis to be
shared with Air
Liquide
Step 2
Your respiratory team
will complete the Home
Oxygen Order Form
(HOOF) and fax to Air
Liquide. A copy will also
be sent to your GP
Step 3
Air Liquide will contact
you by phone to install
the appropriate oxygen
equipment in your
home.
Oxygen Concentrators
 What is an Oxygen Concentrator?
An oxygen concentrator is a machine operated by electricity, weighs approximately 25kg (55lb) and
are 50-70cm (19.5 – 27.5ins) high. The machine draws in air from the room atmosphere, separates
the oxygen from the other gases in the air and delivers oxygen to your child. It is simple and easy to
use.
The concentrator will be serviced by an Air Liquide engineer at three months then every six months
and between these service dates parents are asked to clean and change the air filter on the machine
(standard concentrator only). The filter should be washed weekly in warm water, allowed to
completely dry before replacing in the machine. You will be given a spare filter and the engineer will
explain what you need to do.
The concentrator is:
Airsep NewLife Elite will provide oxygen requirements between 1 – 5L/min only
Emergency Backup Service
Air Liquide will provide an emergency back- up oxygen cylinder with the concentrator. If there are any
problems with the concentrator, parents are asked to connect their child to the back-up cylinder,
setting it at the correct oxygen flow and ring the company for advice.
5
Some problems can be resolved with advice over the telephone; however the company do guarantee
to call out if the problem persists and before the back-up cylinder runs out.
Ambulatory (portable) Oxygen Cylinders
 What are portable oxygen cylinders?
If you child requires oxygen at night and during the day they will require portable oxygen cylinders so
that you can go out. Air Liquide provide different portable oxygen cylinders and also provide a carry
bag for these cylinders.
Leaks

Any leakage of oxygen from a cylinder will be evident by a hissing noise. Slight leaks may not
always be obvious therefore regular checks of the contents gauge need to be made.

Leaks most commonly occur at points where attachments are connected to the cylinder.

Never use any kind of sealing compound or sticky tape to fix a suspected leak

Never attempt to repair a cylinder.

In the event of a leak, do not use the cylinder. Transfer the cylinder to a safe well-ventilated
area, generally outside and open the valve to empty cylinder. Ring Air Liquide to collect the
cylinder, ensuring that they know the cylinder is faulty.

Use the spare oxygen cylinder. Ensure that your child continues to receive supplemental
oxygen. Make arrangements for the spare cylinder to be replaced.
Liquid Oxygen
Used when patients are on high flow oxygen and require cylinders to last longer. Patients have base
unit which holds up to 60L of Liquid oxygen at a temperature of -183C and then the Portable Unit is
refilled from the base unit.
Associated consumables
Including nasal cannula, face masks, tubing etc.
6
Nasal Cannula / Spec’s
 What are Nasal Cannula/ Spec’s?
Nasal cannula are used to deliver a low to moderate concentration of oxygen and are easily applied
as long as your child’s nasal passages are open. Eating, talking and coughing are all possible. As
long as the tubes remain clear and unblocked, it is advised to change the nasal cannula every
seven days. The small tubes should be soft and pliable and to avoid soreness around the nose they
should be inspected regularly. If they do become blocked with mucus, hard or discoloured they
should be discarded and a new set used. The use of petroleum based creams (eg. Vaseline) around
the nose should be avoided, as these react with oxygen and may cause soreness. Water based
creams such as KY Jelly can be used if required.
Nasal cannula are not available on prescription but are supplied by Air Liquide (the oxygen
company). When the oxygen equipment is installed the company will leave enough nasal cannula
with you until the engineer visits again. If you run out of nasal cannula please ring Air Liquide on the
customer service helpline to order more and they will send them out to you by post.
There are four different sizes of nasal cannula:
1. Premature (Ref: 1610)
2. Neonatal (Ref: 1611)
3. Infant (Ref:1601)
4. Intermediate Infant (Ref: 1615)
5. Paediatric (Ref: 1602)
6. Adult (Ref: 1600)
Securing Nasal Cannula
The nasal cannula will need securing onto your child’s face to ensure that the tubing does not
become dislodged.
For children requiring continuous oxygen the tapes used are called Duoderm (extra thin granuflex)
and Blenderm (clear tape) or Mefix (white gauze tape). Duoderm is available as a 7.5cm x 7.5cm
square sheet and will need to be cut into small rectangular pieces approximately 1cm x 2cm.
Duoderm is applied directly to the skin under the nasal cannula tubing to provide some cushioning
and must be renewed weekly at the same time that the nasal cannula are changed. The nasal
cannula are then correctly positioned on the child's face with the prongs into each nostril and secured
with the Blenderm or Mefix. The Duoderm is left in place and the Blenderm or Mefix can then be
changed as frequently as required without pulling the tape directly off your child's skin (Figure 3).
For children who require intermittent oxygen or overnight oxygen only, the nasal cannula can be
secured with Mefix only. When removing the Mefix from the child's face, thoroughly wet the tape with
warm water or baby lotion using either a tissue or cotton wool, so that it can be removed easily
without pulling your child's skin.
Some older children may not need the nasal cannula securing with tape, as the cannula tubing can
be looped over their ears and the toggle pulled taught but comfortably behind their head.
7
If your child has sensitive skin there are alternative tapes that can be used. Tendergrips are small
round stickers, which can be used if your child has very sensitive skin, eczema or any allergic
reactions to the other tapes (Figure 4). These are not available on prescription or from local chemists.
Please contact Air Liquide for the Tendergrips.
Figure 3. Duoderm and Blenderm (clear tape) or Duoderm and Mefix (white gauze tape)
Available from GP on prescription
Figure 4. Tendergrip stickers
Available from Oxygen Nurse Specialist or
Air Liquide
Safety




Ensure the nasal cannula is well secured to your child’s face especially at night when you will
be asleep.
If your child starts to pull the nasal cannula off then ensure the tapes are secured nearer to
their nose (so that there isn’t a gap between their nose and the tapes), rather than on the
middle of their cheeks or near their ears. Put mittens on your child at night.
As your child gets older they become more active. At night they may wriggle more, therefore
the oxygen tubing needs to be checked to ensure that it doesn’t become wrapped round them.
To help prevent this problem thread the tubing down through their babygro or pyjamas at the
side, so they are leaning on the tubing at night, so that the tubing comes out by their feet and
out to the oxygen supply at the bottom of their crib or cot.
Overnight saturation studies can be performed at home to assess your child’s oxygen
requirement. When performing these studies at home the probe is generally applied to your
child’s foot or toe. The probe will therefore come out at the bottom of their crib or cot and
connect to the monitor.
8
Oxygen Safety
Oxygen is a colourless and odourless gas, which is slightly heavier than air. The presence of oxygen
within a building can increase the risk of fire. Oxygen itself is not flammable but may support and
accelerate combustion and cause substances to ignite more easily and burn more fiercely.
Here are a few simple precautions that are needed when using oxygen at home.
DO NOT SMOKE NEAR ANY OXYGEN EQUIPMENT. THIS INCLUDES THE USE OF ECIGARETTES AND E-CIGARETTES ARE NOT TO BE CHARGED ANYWHERE IN THE VICINITY
OF OXYGEN EQUIPMENT.
DO NOT use the equipment near a fire or naked flames.
DO NOT use grease or oil to lubricate or to come in contact with the oxygen cylinders,
liquid oxygen, valves or fittings.
DO NOT handle equipment with greasy hands.
DO NOT store oxygen cylinders in the same place as paint, petrol, and paraffin, heating
gas or other flammable materials.
DO NOT let children play or untrained persons tamper with the oxygen equipment.
DO NOT hang clothes over the concentrator or oxygen cylinders.
DO NOT let a concentration of oxygen build up in a confined space(eg. by leaving
concentrator on when not required).
DO NOT use petroleum based creams (eg. Vaseline) around the nose, as oil based
products may react with the oxygen and can cause soreness. Water based
creams can be used if required.
DO contact the local fire department requesting free fire safety advice and smoke alarms.
Visit www.firekills.gov.uk for safety information.
(Air Liquide automatically inform the fire service that O2 has been installed).
DO have a full understanding in the use of all the equipment before taking your child home
and know who to contact if the equipment is faulty.
DO return defective equipment for replacement.
DO be careful that the oxygen tubing does not become kinked, blocked, disconnected
or punctured.
DO check oxygen cylinders are stored securely where they cannot fall or be knocked
over.
DO store oxygen cylinders away from heaters, radiators and hot sun.
DO ensure a spare cylinder is available for emergency use.
DO keep oxygen supplies at the lowest possible level required.
9
Alder Hey Children’s Hospital NHS Foundation Trust
Alder Hey Children’s NHS Foundation Trust
Eaton Road
Liverpool
L12 2AP
Tel: 0151 228 4811
Web address: www.alderhey.nhs.uk
Respiratory Unit Tel No: 0151 252 5054

If your child is unwell please contact their GP and make an appointment for them to be seen.

If your child has breathing difficulties, call 999. (See page 11)
Clinic Appointments
Chronic Lung Disease of Prematurity
Dr Sinha, Consultant in Paediatric Respiratory Care, will review your child at the Alder Hey Children’s
NHS Foundation Trust, 2nd Floor Outpatients Department approximately two to three weeks after
discharge. Further appointments will be approximately every eight weeks whilst your child remains
oxygen dependent.
The Oxygen Nurse Specialist will arrange to see your child to review their oxygen requirement and
plan to wean them off the oxygen.
When their oxygen is discontinued they will continued to be seen in clinic every three – six months.
Paediatric Respiratory Patients
Your child will be reviewed in clinic by a Respiratory Consultant at Alder Hey Children’s NHS
Foundation Trust.
10
What to do if your Child has Breathing Problems
Is your child?




chesty
wheezy
coughing more than usual
and / or have a temperature
YES
Make an appointment for your
child to see the GP
Doe
s
your
child
hav
e
any
of
the
follo
wing
?
Does your child have any of the following?








going ‘blue’ – do they look blue around their lips, nails or ear
lobes
short of breath or breathing a lot quicker than normal
looking unusually pale
‘tugging’ when breathing - pulling in the muscles around their
chest or neck
sweaty and clammy
a fast pounding pulse rate
reduced consciousness or unusually agitated
(in older children) confused and / or complaining of dizziness
or headaches
NO
YES
Stay calm and reassure your child
Check your child’s airway
If there are any problems with the
concentrator or oxygen cylinder
then connect the back-up supply
and contact Air Products.

Make sure your child’s nose and mouth or tracheostomy is
not obstructed with mucus
Is the oxygen equipment working correctly?
NO
Check
 the oxygen tubing is correctly connected
 the oxygen flow is set at the correct flow rate
 the tubing is mucus free and not kinked
 the concentrator is working or there is sufficient oxygen
left in the cylinder
Check your child’s breathing
returns to normal
Is there still a problem with their
breathing?
YES
Emergency procedure
Call 999 for immediate help and advice
Increase the oxygen flow to your child, as instructed
Stay with your child and await
the help of the emergency
services
YES
Is your child breathing?
NO
Start resuscitation procedure whilst waiting for the
emergency services to arrive
RESUSCITITION TRAINING IS REQUIRED BEFORE DISCHARGE
11
Insurance Companies / Fire Service / Electricity Company
House Insurance
Inform your house building / contents insurance company that oxygen equipment has been
installed in your home. The insurance company will make a record of this information on your
insurance policy. Most companies will accept this information verbally by phone, however some
companies may ask you put the information in writing. If a letter is requested then contact Carol
Lawrence for a letter and keep a copy of the letter with your insurance policy.
Most companies will not alter the insurance premium, however if a family do not inform the
company it could jeopodise any claims that they make.
Car Insurance
You are advised to tell your car insurance company that you will be carrying portable oxygen
equipment in your vehicle. The insurance company will make a record of this information on your
insurance policy. Generally most companies accept this information verbally by phone, however
some companies may request that the family inform them in writing. If a letter is requested then
contact Carol Lawrence for a letter and keep a copy of the letter with your insurance policy.
Most companies will not alter the insurance premium, however if a family do not inform the
company it could jeopardise any claims that they make.
Secure cylinder in vehicle
You MUST ensure that the oxygen cylinder is secured during all journeys either in the boot of the
car, behind the front seat with a secure fastening. You may need to purchase elastic luggage
straps to secure the cylinder safely.
Travelling on Public Transport
You may need to ring your pubic transport supplier to enquire if you can travel on their service with
an oxygen supply. Some companies may need you to carry a supporting letter.
The companies below allow transport with oxygen and do not require a supporting letter.



Arriva 0844 800 44111
Merseyrail 0151 702 2071
Stage Coach 0151 330 6200
Fire service
Air Liquide will automatically inform the local fire services and the fire department will record this
information in case of any emergency calls. You are also advised to inform the fire services that
oxygen equipment has been installed in your home and request a ‘Home Risk assessment’ and
Merseyside Fire Services will visit your home, check the property, install smoke alarms and give
fire safety advice free of charge.
Freephone number for the Merseyside is: 0800 731 5958
Lancashire is: 0800 169 1125
12
Electricity
Electricity costs
If you are using an oxygen concentrator, Air Liquide will reimburse the electricity costs at
the standard rate of electricity. The refund will preferably be a direct payment to your bank
account or electricity company, therefore Air Liquide will need the details of your electricity
company or your bank details.
Electricity Supplier
You are also advised to inform your electricity supplier that your child needs oxygen and
that the oxygen machine requires electricity to work. If there is a problem with the electricity
supply you will need priority to be reconnected.
Moving House
If you are moving house, a new Home Oxygen Order Form (HOOF) will need to be completed with
your new address details. Please contact the Oxygen Nurse Specialist (or your GP) informing
them of your new address. You will not be able to order any oxygen supplies at the new address if
a HOOF has not been completed.
13
Allowances
Disability Living Allowance (DLA)
If a child is oxygen dependent, the family can claim for Disability Living Allowance (DLA).
The ‘Child Disability Living Allowance’ forms can be obtained from:
 Contact DLA office on TEL: 0800 88 2200
 www.direct.gov.uk
 www.direct.gov.uk/en/DisabledPeople/FinancialSupport/DisabilityLivingAllowance/DG_1001
1925
Scroll down to either:
o download a claim form to print at home (Disability Living Allowance form for people
under the age of 16 PDF document 259KB)
or
o download a claim form to complete on your computer.
DLA is awarded at different levels depending on your child’s illness and needs.
If your child is over 3 year old, the DLA will combine both a carers and a mobility component.
Carers Component
There are 3 different levels of carer’s component:
Low/Middle/High
Mobility Component
There are 2 levels of mobility component: High level / Low level
If a child has previously been awarded DLA, the claim will be reviewed on a regular basis. If a
family has any queries regarding DLA reviews, the office can be contacted on Tel no: 0845 712
3456 giving them your child’s name and reference number.
The Blue Badge Scheme provides a range of parking concessions for people with severe mobility
problems who have difficulty using public transport. This enables badge holders to park close to
where they need to go.
A parent of a child who is less than two years old may apply for a badge for their child if the child
has a specific medical condition which means that they:
a. must always be accompanied by bulky medical equipment which cannot be carried
around without great difficultly;
and / or
b. need to be kept near a vehicle at all times, so that they can, if necessary, be treated in
the vehicle, or quickly driven to a place where they can be treated; such as a hospital
14
Carers Allowance (CA)

Carers Allowance is a social security benefit to help people look after someone who gets:
a) Attendance Allowance
b) Constant Attendance Allowance at not less than the full day rate
c) Disability Living Allowance at the middle or highest rate for help with personal care.

Invalid Care Allowance is paid to the person who does the caring not the person being
cared for.
For further information or an application forms contact:
Carer's Allowance Unit
Palatine House Lancaster Road
Preston
PR1 1HB
Tel: 01253 856 123
15
Stopping supplemental oxygen
Babies with Chronic Lung Disease of Prematurity
Weaning your baby off supplemental oxygen is a gradual process, which may be achieved over
several months (occasionally it can take longer).
Following discharge from hospital your baby will initially be reviewed at home by the neonatal
community team. Infants with Chronic Lung Disease of Prematurity are seen by Dr Sinha
(Consultant in Paediatric Respiratory Care) in clinic 2nd Floor Outpatients Department at Alder
Hey Hospital, approximately two - three weeks after discharge, and then every eight weeks in
clinic. Home visits will be made by Carol Lawrence, Oxygen Nurse Practitioner in-between these
clinic appointments.
At the first home visit, which is approximately four weeks following discharge, the process of
weaning a baby off oxygen may be considered. Assessment at each review is essential to ensure
that your baby is well with no respiratory concerns. They must be gaining weight, and be clinically
well before stopping oxygen is considered. Their oxygen saturation levels are monitored, ideally
when they are is awake, asleep and feeding, although this is not always possible.

If they are receiving less than 0.5L/min the time (hours) off oxygen may be increased at
each review, starting at one hour a day gradually increasing over several months to off
oxygen 12 hours a day and on overnight oxygen only.

If they are receiving more than 0.5L/min, an overnight saturation study will be performed
and they will be weaned down to 0.5L/min before weaning off oxygen into air is
considered.
When your baby is being weaned off their oxygen, you will be are given instructions about what to
do and advise if you have any concerns.
When your child has been off oxygen 12 hours a day for a month, an overnight saturation study in
air will be performed. This study can be performed at home whilst they are asleep. The
information from the monitor is downloaded onto a computer. If your child’s overnight saturations
in air are within the normal reference range, then the oxygen will be discontinued.
When their oxygen is stopped they will continue to be reviewed in clinic by Dr Sinha (generally
every three – six months) but home visits from the Oxygen Nurse Practitioner will be
discontinued.
16
Stopping supplemental oxygen
Paediatric Respiratory patients
Weaning your child off supplemental oxygen is a gradual process, which may be achieved over
several months (occasionally it can take longer).
Following discharge from hospital your child will be reviewed in clinic, by a Respiratory Consultant.
The frequency of these appointments and visits will depend on your child’s oxygen requirement
and respiratory problem. Your child’s oxygen saturation levels should be a monitored when they
are awake, asleep and feeding although this is not always possible. Your child should be gaining
weight, and be clinically well before stopping the oxygen is considered.

If your child is receiving less than 0.5L/min the time (hours) off oxygen may be
increased at each review, starting at one hour a day, gradually increasing over several
months so that they are off oxygen 12 hours a day and requiring overnight oxygen only.

If your child is receiving more than 0.5L/min, an overnight saturation study will be
performed and they will be weaned down to 0.5L/min before weaning off oxygen into air
is considered.
Whilst your child is being weaned off their oxygen, you will be given instructions and advice about
what to do if you have any concerns.
When your child has been off oxygen 12 hours a day for a month, an overnight saturation study in
air will be performed. This study can be performed at home whilst they are asleep. The
information from the monitor is downloaded onto a computer. If your child’s overnight saturations
in air are within the normal reference range, then the oxygen will be discontinued.
These are only guidelines to weaning your child off oxygen and obviously the time off oxygen is
altered to suit the individual child and their ability to cope off the oxygen without any problem and
may vary from child to child.
17
Holidays
 Holidays in England and Wales
If you are planning a holiday either to visit friends and relatives for a family holiday Air Liquide
provide a free holiday oxygen service in England and Wales. If you are going outside the Air
Liquide contracted area then Air Liquide will contact the specific oxygen company for that area and
oxygen can still be supplied. Be aware that if you are supplied by another oxygen company then
the equipment may vary slightly.
What you need to do:






You can contact Air Liquide directly to discuss your holiday arrangements.
Ensure you give plenty of notice (preferably four weeks).
You will need to provide details of the holiday address including postcode, holiday dates,
reference number, contact name and telephone number.
Holiday Oxygen information leaflet is available from Oxygen Nurse at Alder Hey.
Air Liquide will contact you to confirm arrangements.
If you are staying in a hotel, guesthouse or caravan you need to inform the owners of the
holiday destination that your child is oxygen dependent (for insurance purposes) and tell
them that oxygen equipment will be used.
 Holidays Abroad
Air Liquide provide a holiday information service for advice if traveling abroad however there is a
cost for oxygen provision abroad.
For further advice on traveling and to receive the Air
Liquide Travel and Holiday Guide contact:
Air Liquide 0808 143 9992 between 08.30 – 5.50pm
More information is available from the:
 Department of Health travel advice on 0800 555 777 or www.dh.gov.uk/travellers
 If traveling in EEA please contact DoH on 0207 2104850
 British Lung Foundation on 08458 50 50 20 or www.lunguk.org.
Ask for a copy of their booklet ‘Going on Holiday with a Lung Condition’
18
‘Things To Do’ List
You will be seen by the Oxygen Nurse Specialist and the oxygen equipment, oxygen safety will be
discussed. She will arrange for the Home Oxygen Order Form to be completed and oxygen
equipment to be organised for your home. Once you have been seen and the procedure
explained, then the following checklist can be completed.
WHAT TO DO
1. Sign consent form, so that your Respiratory Team can complete the Home
Oxygen Order Form (HOOF) and fax your child’s details to Air Liquide, PCT and
GP.
TICK
2. Inform your house insurance company that oxygen has been installed at your
property. If you rent the property, inform the landlord.
3. Inform your car insurance company (If your child requires continuous oxygen and
you intend carrying a portable oxygen cylinder in the vehicle).
4. Ensure portable oxygen cylinders are secured in your vehicle.
5. Merseyside Fire service will provide free smoke alarms and safety advice. Ring
Freephone no: 0800 731 5958 and ask for a Home Risk Assessment.
6. If using an oxygen concentrator, inform the electricity board ensuring you are
priority for reconnecting, incase of any electricity cuts. If you are on metered
electricity ensure you always have enough top up on your card to cover the
electricity costs.
7. In case of a power cut always have a torch handy. Ensure you are aware of how to
use the back up oxygen cylinders and have a contingency plan incase of a
prolonged power cut.
8. Contact the DLA for Child Disability Living Allowance form and this will be sent or
apply online www.direct.gov.uk (see p14).
9. Resuscitation training has been completed.
Resuscitation training can be arranged at Alder Hey Hospital by contacting
Pete Arrowsmith or Russell Ashworth (Resus Trainers) on 0151 252 5008.
10.Before your child is discharged, check that the:
 Oxygen equipment has been installed.
 Portable cylinders have been delivered.
 You will need to bring a portable cylinder into the hospital, so that your child
can be discharged home on the oxygen.
 You are shown how to secure the nasal cannula
 You are given a supply of Duoderm and Blenderm / Mefix to secure the nasal
cannula.
11. A clinic appointment with a Respiratory Consultant will be arranged.
19
Contact address / telephone numbers
Respiratory Consultant: ……………………………………………
Respiratory Unit
Alder Hey Children’s NHS Foundation Trust
Eaton Road, Liverpool
L12 2AP
Tel: 0151 228 4811 (Alder Hey switchboard)
Web address www.alderhey.nhs.uk
Air Liquide Home Care
Alpha House, Wassage Way, Hampton Lovett, Droitwich, WR9 0NX
Freephone: 0808 143 9992
Air Liquide can provide oxygen information in other languages and formats if requested
British Lung Foundation
73 – 75 Goswell Road, London
EC1V 7ER
Tel: 020 7688 5555
Fax: 020 7688 5556
Internet: www.lunguk.org
E-mail: enquiries@blf-uk.org
Family Fund
PO Box 50,York, YO1 9ZX
Tel: 01904 621115
E-mail: info@familyfund.org.uk
Internet: www.familyfundtrust.org.uk
This fact sheet only gives general information. You must always discuss the individual treatment
of your child with the appropriate member of staff. Do not rely on this fact sheet alone for
information about your child’s treatment. This information can be made available in other
languages and formats if requested.
Alder Hey Children’s NHS Foundation Trust
Eaton Road
Liverpool
L12 2AP
Tel: 0151 228 4811
www.alderhey.nhs.uk.
RESPU/B/1/05 © Alder Hey 2017
Date of next review February 2018
PIAG 33
20
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