My Stroke as seen on Facebook
My Stroke
as seen on Facebook
My Stroke and how it was communicated
via Facebook Social Media
Thomas Runds
MEDXFORCE
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Table of Contents
Tommy’s Timeline as it appeared on Facebook ….......................................................................... 3
October 13 and 15th .................................................................................................................... 3
First Newsfeed about what happened appeared on Facebook ................................................. 4
Thomas - The Egoist .................................................................................................................... 5
Staging the comeback ................................................................................................................. 6
Food Dye to ckeck the swallowing abilities ................................................................................ 7
Soccer, soccer, soccer ................................................................................................................. 9
I have control again (at least social media is mine) .................................................................. 11
Eat and Drink again ................................................................................................................... 13
Time to board the flight! ........................................................................................................... 13
Learning to walk again .............................................................................................................. 16
Without a Walker ...................................................................................................................... 18
Thanks to my friends................................................................................................................. 18
Power Up................................................................................................................................... 19
Check-In Remedy – Fake!.......................................................................................................... 19
Oh man, I waited for that moment! ......................................................................................... 20
Tommy’s first real written update: ........................................................................................... 21
Coming home for good ............................................................................................................. 24
Music is healing ......................................................................................................................... 24
Remedy is it – First time out ..................................................................................................... 25
A TV star is born ........................................................................................................................ 26
Skull Walking Stick .................................................................................................................... 27
Real Housewifes influance ........................................................................................................ 28
Electronically Challenged – I Do not think so! .......................................................................... 29
Vacation – Bahamas for a few days .......................................................................................... 30
Healing with the Dolphines ....................................................................................................... 31
Music is a thought booster ....................................................................................................... 32
Update....................................................................................................................................... 33
Art is beautiful........................................................................................................................... 36
How it feels to have a stroke .................................................................................................... 37
My Survey ................................................................................................................................. 38
MedXForce is coming ................................................................................................................ 42
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Vacation .................................................................................................................................... 42
Different Thoughts .................................................................................................................... 43
It is not Rocket Science ............................................................................................................. 46
MedXForce ................................................................................................................................ 47
My Birthday............................................................................................................................... 47
Check up in Germany ................................................................................................................ 49
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Tommy’s Timeline as it appeared on Facebook …
October 13 and 15th
Everything seems to be normal, a wonderful life …
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
First Newsfeed about what happened appeared on Facebook
My sister and Navi needed to take my Facebook page to the next level.
The strokes happened October 25th and 26th. Till November 8th at least
people in Europe and far away friends in the US had no clue what was
going on.
Translation of what my sister posted on my Facebook:
Almost two weeks ago, Thomas had a few strokes. A serious
brain stem stroke and three smaller ones in the brain center.
He was moved from ICU yesterday. He is getting his food
trough a feeding tube, but after 11 days he is now off the
ventilator and can breathe on his own again.
His right body half is paralyzed, or extremely weaken. With
aggressive physiotherapy Thomas fine and gross motor skills
will hopefully come back.
This is a long journey, but Thomas is committed and will not
give up. His humor is not lost, although these are very difficult
times. I will update you soon … Navi and I am on the way to
visit him.
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Hope this short messages will help all German friends to
understand what happened over the last two weeks.
There are NO pictures from ICU as a) nobody really was up to
get the camera out and b) nobody should be exposed to it and
see the dilemma in pictures. It was hard enough for my family,
Navi and close friends to comprehend what they saw in ICU
with their own eyes and many said later that they did not
really need to see all that. During my time in ICU it was not
clear if I make it or not and if you look like the walking dead, it
is better if you keep that picture just to a few. Navi and Petra
decided to stop the visitation to keep bacteria out and to
protect people. Good call!
I think the patient is lucky in this situation as e.g. I could not
see myself I was not afraid of what maybe is coming, I did not
see all the IV’s, the food line, the EKG cables, the ventilator the
drips etc. The things I remember, the images and pictures I
have were not that bad … as mentioned I see myself smiling
with my friends in my arm sitting together with them on the
balcony. Quite romantic. If I would have seen myself at that
point and if my mind would not have been so foggy I would
have had serious doubts as well, if I ever make it.
Thomas - The Egoist
Translation of what my sister posted on my Facebook:
This is a message from Thomas. He asked me to post it in his
name:
"It is good to be an egoist right now. I am fortunate but I am
crying a lot. Thanks for your wishes. My sister will keep you
updated."
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Staging the comeback
Translation for what my sister posted on my Facebook:
Vielen lieben Dank fuer Eure lieben Zeilen, Eure
Genesungswuensche und all Eure moralische Unterstuetzung.
Thomas freut sich sehr darueber und es ruehrt ihn immer zu
Traenen. Es ist schoen zu wissen, dass er so viele liebe Freunde
hat, die sich um ihn sorgen. Wir hoffen, dass er bald seine
Lieblingsgeraete wieder benutzen kann, um mit Euch
kommunizieren zu koennen.
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Food Dye to ckeck the swallowing abilities
This is how you look after the swallowing test. Maybe I should
describe the process for you.
Because the body does not know anymore how to swallow the
muscles and the connection in your brain have to be retrained
to function properly.
First I was really upset that I could not drink or eat. I did not
understand why it was a big deal. I was craving for water; I was
craving my apple juice, my favorite food. Later, I was just really
looking for water, the apple juice lost his mojo. However, I was
not allowed any fluid or food and I was used to have my food
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
through my food line and my drinks directly injected into my
stomach. Interesting to feel the gush of water not going down
as normal but going directly into the stomach. But of course I
wanted to learn again how to drink and eat.
When you did all the exercises asked by the speech therapist
(yes, his falls under the speech therapy) they give you water in
different consistencies. From hard to soft to pudding from and
water … The water is being colored so when you are doing the
swallow test they can see if residue is getting into your lungs.
Of Course you want have anything than air going into your
lungs. So once you have done the swallowing they check the
trach and basically take a look what has moved down to the
lungs. Ahhh, what a nasty process. And It is not inclusive. If the
speech therapist does feel that your voice is not clear, or your
cough this way or the other (I am sure there are many more
criteria’s they look for) they will not allow you any food or
fluids. And it is right for your own protection.
Once I passed I was allowed to have a little ice cube every
hour. There was no accumulation of ice cubes, so I was
basically watching the clock for an hour to pass so I could ask
for the ice cube.
Over time I progressed and I was allowed to have pureed food.
At this time I asked my folks to basically smuggle food in and
“yeah” they did. I got my food through the feeding tube,
pureed food from the hospital kitchen and food smuggled in by
Petra and Navi. Yummy. I thought the Greek Yoghurt with
honey was actually smuggled, but it turned out to be in check
what was being allowed. I gained weight fast.
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Soccer, soccer, soccer
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
I have control again (at least social media is mine)
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Eat and Drink again
Time to board the flight!
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Learning to walk again
Learning to walk again is something you would never imagine
that is a problem, but it is. First even before you can even think
to get out of the chair to walk, it is needed to be able to sit in
your bed, get your balance right and hold your self in a
position which you can maintain on your own. Sounds funny,
sounds easy. Not really, Not sure why but I lost all sense of
balance, I lost all sense of directions. The asked me to sit up in
my bed, and I think we needed 4 people to get me up in my
bed to sit on the side of the bed. I finally did and everybody
was so proud.
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Then came they day they wanted me to not only sit in the
wheelchair and move forward by pushing the wheels, but get
up on the bar and walk. Even just a few steps would be such a
miracle. Seriously? Wow, I walked my entire life what is so
complcated? Well. It is hard, it is complicated. The body does
not know the sequenze, the basic rules of walking. Everything
needs to be relearned. So as you can see in the picture, it took
3 people to get me going. And if you think going forward is
hard, going backwards is even harder. You are filled with fear,
that your bones crush, that you can’t control the muscles, that
you fall .
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Without a Walker
Thanks to my friends
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Power Up
Check-In Remedy – Fake!
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Oh man, I waited for that moment!
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Tommy’s first real written update:
Overall:
Good, like I always said, I need the fever. I have it! :-)
I have like spasm episodes, like people have when they wake up and
stretch their muscles. Mine looks just very different but it has the same
effect and it feels good. I am looking forward to have a 100% recovery.
Did I mention, I am a nonsmoker now? Cold turkey hahah (of course you
think, but I was asked in ICU if I want to have a patch). I lost 20 pounds
[granted not all fat]. I work out 3 hours a day ... Not bad for a couch
potato, and when I come home finally I will do my insanity DVD. At least
once in life I want to look good (LMFAO).
I do not know where life will take me next. I have loads of things to figure
out. For now I am just happy I am here with you. I am not afraid to die, as
long as I can:
A) work on my bucket list - I don't even have one - was not aware I need
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
one yet. Should go fast - I in fact I liked the code blue on October 26 as
the lights just went out (no pain).
B) I want to have the chance to help some people if not change the world
Mind:
I do not think the stroke had any negative impact on my mind. In fact I
think I believe I know more than I knew before [not about tech stuff of
course]. I am still fast [some might question that], and humorous
[questionable as well]. Ok without joking, I do not see a negative impact
of the stroke to the mind, etc.
In the beginning I lost a lot of weight, probably because I cried a lot. Ok
no joke, I cried a lot in the first few weeks, as dreams haunting you, fear
overwhelms you. Same effect (single tears to streams) I have with music I
love [Buddha bar, some old German songs I grew up with, or songs from
my remote DJ Dagmar]. I cry as well when I think how lucky I am. I cry as
well for the pain, fear and work I induced for the people I love soooooo
much and love me soooooo much.
Face:
Remember when your dentist extracted your tooth [numb and painless].
This is my left side of the face.
The right side is normal I think.
Voice:
Well, probably the most notable thing right now. Pretty weak, pretty
nasal. It will get stronger as weeks go by. My laugh is funny I think, I
actually need to laugh about my laugh when I think about it. It is almost a
silent laugh but with an open mouth.
Vision:
Without glasses I do not see much. Wow, what a difference from before.
The stroke impacted either the brain (not clear yet) or the optic nerve or
weakened the muscle (that would be ideal). I had double vision before
(2-3 weeks back). That was shitty as everything was double (depending
on distance and angle). BTW: Who wants to see two episodes of CSI Las
Vegas at the same time? Well, double vision is gone, now I deal with
timely stitching the pictures together both eyes are creating. It does
work short distance, but not long distance.
Arms and Hands:
Strokes work funny, actually our Brain does. My left face is impacted my
right face not (at least not that I know), but for the rest of my body the
right side has a bigger handicap than the left side.
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Good thing: I can move both arms and hands - I was able to make up for
the lost path ways in my brain. I am lucky.
My left arm is kind of ok. A bit weak, but workout and weight training
will help [6-pack here I come moral]
My right arm is different ha, much weaker [probably same percentage
point as hand weakness] but what is really funny is the pain and
temperature tolerance. At the right arm I do not feel pain [believe me,
we tested it and I have bruises now], nor hot or cold [we tested that as
well].
It seems though that the right arm is walking up slowly but surely, as it
feels like 1000 needles poking me constantly over the last two days.
Hand power [Grip]
Healthy left hand 116 [not sure what they measure it in]
My left hand [least effected side] 76
My right hand [effected side] 36]
My right hand now participates when I write on the tablet or phone but
it has the tendency to smear over the keyboard and introduce new
letters and therefore new word recommendations, some of them go
unnoticed. Of course I use the knife with my right hand [wish the hospital
knifes are sharper], and it falls out of my hand once in a while. I like
finger food anyway.
Also, it does not seem I am going home on Friday (no Christmas at home)
as I am way off with my balance. Sucks, but safety first. You guessed it
because of my balance issues my walking without a walker is currently
rather frustrating than rewarding. I am really amazed what the human
body can do and we are taking it for granted - every day - wow.
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Coming home for good
One more day and today we train the worst case scenario – falling and
recovering from it. Not so easy! Seriously, after such a long time and loads
of changes in your body and muscles it is not easy to get up – well, it is not
easy to fall either. I actually hurt myself pretty good, but I did not say a
word as I really, really want to go home. I am ready and I have enough of
that, so I do almost anything to pass the test.
So today Navi is picking me up. Paper work and loads of signatures … I
trained getting up the stairs, getting up from a chair (without my hands, as I
am not willing to install handlebars in the bathroom), get into a car (SUV or
normal car), getting cloth on, brush your teeth and wash your face.
Everything looks good in theory and in the simulated environment of the
rehabilitation hospital.
Ok I get in the car just fine, super excited to go home …. Driving is not fun.
Actually I am only the passenger, but my brain is 10 seconds behind the
action. First it was ok as the street had 4 lanes each, but as closer we get to
the house as less lanes are available and everything looks so close … trees,
streetlights, cars. Pedestrians. I told Navi I want to go back to the hospital.
Well, there is no way, she brings me back , she told me to close my eyes
until we are home. Did that! Worked!  I am home. Nice! Love it!
Music is healing
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Remedy is it – First time out
Ok here is what happened at Remedy. First of all, it was awesome, getting
out and seeing people is such a nice thing.
I had my wheel chair … I was a bit nervous, but to my surprise and to the
surprise of Navi, Chris and Jo, I was not the only one with a wheel chair.
There were at least 5 of us, wheel chairs and walkers. Awesome. I felt really
good. BTW: The wheel chair is giving you the extra boost of confidence
(other patients have the opposite feeling) you need to power through. I feel
like, people look, but they can make up their own story about what
happened to me, I don not even need to tell them. In a walker (which I have
as well) I feel more vulnerable, less secure and not confident enough.
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
A TV star is born
Have a look:
http://www.youtube.com/watch?v=S6yoz8FRCRk
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Skull Walking Stick
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Real Housewifes influance
Here is the sad part about it … I got a call from my Pharmacy to come in
and have a talk with the Pharmacist. Totdally excited (somebody wants to
talk to me –Awesome!) I get to the Pharmacy and the person in charge
tells me that FDA issues a warning for a medication I take. It increases the
suicide thoughts …. Hmm, I do not think I need that, so I tell her that I am
not taking the medication … anyway,
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Electronically Challenged – I Do not think so!
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Vacation – Bahamas for a few days
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Healing with the Dolphines
No need for many words. They for sure are magical!
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Music is a thought booster
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
A recovery update
Before we head to the important part of day, the Euro Cup game
Germany vs. Portugal I wanted to give you an update about my well
doing.
I met my surgeon who operated me 7 month ago on Friday as he
wanted to see me (believe me, I wanted to see him as well). He was
surprised to see me walking, talking, moving, balancing the way I did
it, and he was very happy (I could see it in his face and hear it in his
voice) with the progress I made. In fact he said: “I am speechless and
humbled to sit here with you. I would have not expected to see you
this far after only 7 month. This is crazy” He asked me for my consent
to be his genuine pig when he presents cases to fellow doctors etc.
When I asked him if he can explain in simple words what happen that
day (October 26, 2011) with me, he said: “The best analogy I have for
you is that we (the team of doctors, I the surgeon) pushed you out of
the way, so you did not get hit by the Train, but we did not see the
Truck coming.” Autsch, all I was thinking when he said that was I wish
he would have used the word “Double Decker” as the Bus was clearly
huge. Anyway, I guess I am happy and lucky, and I do not question
the competence or integrity of him and his team, in fact I am
humbled as well that I met him when I did (the right time, the right
place).
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
So the moral of the story is, live your life every day, every day to the
fullest, do what you like, do what you want, be respectful to you,
your body, your soul, AND others. Treat other the same way you
would treat yourself. Be an egoist (not always good, but helps to
recover faster) …. Life can be over soon! Btw: There are probably
many different other views possible you (and I) can have in life, this is
just a reflection of me and the state I am in right now (this moment).
– Just saying
My recovery and what is going on …
Ha, well, obviously I did not came back (my comeback) into the world
without a reason. Do I know 100% why I am here now – NO! But I am
helping friends on the East Coast, West Coast and Europe doing
business. It makes me happy, gives me a purpose, gives me selfconfidence, and gives me the smile when I go to bed. Just to make
sure, I can’t really work a 100% fulltime job, as I can’t focus long
enough, I can’t sit still (like a kid), I do not have patience (upps, poor
employees of mine).
I as well (as much as I can) work with a very, very good friend in
Germany (Manuel) to get a new business of the ground. Mainly (at
least in the beginning) we are focused on helping stroke patients to
communicate with loved ones, and doctors. In a later (phase 2) we
are expanding in to rehabilitation services to bring those patients
Back into “our” world. Of course if you want to participate and give a
monetary gift to support these efforts, I will publish the bank account
number where you can give “all” your money to. The money is used
for a good cause and will help to reach the goal (Is it me being rich
faster? – darn, I think I should disclose that ;-)) of helping people
faster.
My medical recovery is not so smooth …
About 4 weeks ago I got diagnosed with high blood pressure. All of
the sudden my body (in fact the brain stem, where I had the stroke –
remember the bus – the brain stem controls the blood pressure)
decided it is time to up the pressure and when I went for my
evaluation (I wanted to restart my physical therapy for rehabilitation)
the guy said I need to go to my primary doc. So I did, she in turn send
me ASAP to the hospital where they did an MRI. They were afraid
that I have another Stroke or a Heart Attack. Against all odds I did not
had one and I was send home … now I am on blood pressure
decreasing (like many of us) medicine and my brain stem is trying to
figure out what to do next … acting a bit moody (up and down with
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
the blood pressure at will) … Next episode was a gastrional (or
whatever the word is) infection which makes you sit on the bathroom
for hours …. Nice cleansing method ;-). Well it seems I now had it
twice in three weeks and I can tell you…. It is like a bike hits you (not
a train or a bus, but a bike). I was so exhausted I walked like a 105
year old noble peace prize winner after smoking a joint. So we went
for 1 week to California and I spend 6 days and 12 hours in bed. Love
it! The only good thing was …. Almost at the end of this endeavor
(BTW I thought I have to jump the Jordan river - you say that if you
think you have to die) I had no issues with my arm, my hand , my legs
... everything was working normal, speed was there, grip was there,
amazing . It was like the 8th world wonder. Now, I know I can recover
100%. Since the (this was Monday) I have regained my strength, I am
eating and drinking) as a normal person and I am back with my issues
(stroke related – means slow when writing, grip, walking, movement,
balbalabla)
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Art is beautiful
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
How it feels to have a stroke
Link to the Video
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
My Survey
Dear all, I would like to ask YOU the following favor:
Would you please answer a few questions I have? (List is
below)
You can answer here in FB or you can email me
[email protected] or Victoria @
[email protected]
Check out the downloadable version of the questions:
https://www.box.com/s/a10f0f4836f85cf41aaa
For my German Friends - Eine deutsche Version der Fragen
und dieses Textes befindet sich im Netz. Bitte klickt den
link https://www.box.com/s/a10f0f4836f85cf41aaa
The more you write the better! Yes, I gave some
predefined answers, but if you like to answer in a
sentence, a novel, PLEASE do so. The more you remember,
the better! The more you let your mind go, the better! The
more you say what you felt, the more it will help me. Yes, I
know it sounds selfish (maybe it is, maybe it is my egotism,
I said it … “To help ME”. Geez, who helped you? Correct!)
That is in fact the reason why I am doing it. At the end, I
would like as much detailed feedback as I can get, as it will
help me to compose something which will help others in
the same or similar situation as I was: to find help and
tranquility, freedom, happiness, and help in the middle of
the storm. I am lucky as I had you guys… and now I need to
make sure that others know what you went through with
me, so WE can help them.
Attention people:
I do not sell dishwashers, cars or iron boards, but you need
to know and approve however the following: Your
answers might be used on our website (not done yet).
With your response via FB or e-mail you are OK with us
using it for MedXforce. COOL?
Here are the Questions:
Your Name (only if you like)?
- e.g. Megan Foxy
- e.g. Randy Shogun
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What is your relation to Thomas?
- Relative
- Friend
- Colleague
- Others, please list
Where do you live? (Be specific if you like)
- Close to Thomas (50 miles to his house in Henderson,
Nevada)
- Another state
- Another country
- Others, please list
When did you hear about Thomas’s stroke? (It happened
in the evening October 25th 2011)
- ASAP
- Way later
- Others, please list
How did you hear about Thomas’s stroke?
- From ….. via …..
- FB
- I heard it from a second person
- Others, please list
What was your immediate reaction to the news?
- Shock and disbelieve
- Must be a joke
- Crying out load
- Others, please list
What was your medium to receive updates?
- Facebook
- phone calls
- visits
- Others, please list
How did it affect you and maybe your family?
- YES
- No
- I needed to go on with my life
- Others, please list
Did it change your life (even just for a month ;-))?
- E.g. I stopped Smoking
- E.g. I stopped playing soccer
- I go to church now
- Others, please list
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Did you try to get more information about Thomas’s
wellbeing?
- Yes, but it was a struggle
- No, I had what I needed on FB, or per Phone
- Nahh, I saw him in the hospital all the time
- Others, please list
Would you like to see Thomas?
- YES
- No
- I have enough when I see his pic on FB ;-)
- Others, please list
When Thomas posts updates on Facebook about his
stroke, do they make you …
- Smile
- Think
- Cry
- Strong
- I feel nothing
- Others, please list
When you see the progress he makes (yes he jokes about
it), what do you feel?
- He is just talking BS
- He is an inspiration for me
- Man this guy is a fighter
- Others, please list
Did you try to learn more about strokes?
- yes
- risk factors
- symptoms
- prevention
- no
Did anybody else you know suffer from a stroke?
- no
- family
- friend
- other
What should have been different (we can’t turn back the
time, but …)?
- Communication more often
- More visits
- More e-mails
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
- More Phone calls
The following questions are for the people who visited
Thomas in ICU (Intensive Care Unit) right after the incident
(the next 5-8 days): Please describe what you saw and felt
as vividly as possible (I know it is hard, but it will help me,
you and hopefully others to prepare them for what they
will see and go through).
• What did you feel when you saw him?
• Did you get the feeling that he would not come back
and join this world (never recover)?
• Did you think he would recover 100% from this?
• Something else (please elaborate)
Wow, what a long list and a big favor to ask. I do not think
I did that many times in my life (I mean ask so many
questions). I feel this is the right time, the right moment to
invest in what I hope will help others. I now can give back
what I have and why I am still here. I can’t thank you
enough for being there for me and even now helping me.
I believe the hour you just invested is a good investment.
Thanks Thomas
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
MedXForce is coming
Vacation
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Different Thoughts
I am trying it again. My previous post on Facebook was not successful;
in fact it was rather frustrating …. Anyway let me do it again. Problem
is, I can’t remember what I already wrote – believe me, it probably
was good.
Anyway, not even a week to go and 1 year is behind me and the
stroke. You know how many weeks, days, hours and seconds
representing the time in between. It is stunning if you look at it. 1
year, 52 weeks, 365 days. Does not sound like a lot, but if you realize it
in hours, minutes and seconds, it becomes clear that this is truly
fascinating … Just do it with your own age and you will be amazed.
Looking at my ONE Year … 1 year becomes 12 month, 52 weeks, or
365 days or in other ways … 8760 hours, 525000 (yes thousand) and
600 minutes or 31 million 536 thousand seconds. Wow a lot of time
went by. Did I do my math right?
I think I learned a lot, I went through rehabilitation, transformation,
recreation, joy and frustration, love and hate … whatever you can
think of – everything was in it. A ride like no other – Dr Dre “Pimp my
ride” would be proud of me. Interesting to say the least …
Did I like every part of it – Nope.
Did I come out better- Yep.
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
I gained some weight (funny enough, I lost initially over 35 pounds –
but now a year later, it should be no surprise, I can’t shake my booty
as I did before, so the calories stick to me).
So what does better means? I became a better person, nicer and more
rounded ;-) - I think it is true.
Am I done yet? I do not think so. In fact I feel like the stroke is not
done with me – but guess what stroke – I AM NOT DONE WITH YOU
EITHER!
I am staging my comeback (Not that I want to be on a stage
performing - what would I do? – Dancing maybe, making flips in the
air – I do not think so, but I plan to be back at life (I am already), and I
will be better than before. I learned a lot, I grew up, I have grey hair
now. So I think the results are actually good. A few minor impairments
are still present. Like the issues with the straight walking (I am still not
be able to do that – and I do not think I will ever be able to), like the
dizziness in my head, boahhh I am really done with the drunk feeling
or the stoned feeling – don’t get me wrong, it was nice for the first
few days, but after a year I am craving to have a clear head … Who
wants to deal with Cheech and Chong all the time. BTW, when I lay
down, sit or I am in the water (vacation in Mexico was AWESOME), I
feel like I am healed … especially in the water it is truly awesome.
Vacation is AWESEOME anyway
Ohh, I forgot something cool to tell – I did not have a migraine, like I
had before, since I had my stroke. Kinda cool, no? Yep I agree and my
doc as well, but we both came to the conclusion that dealing with the
migraine would be easier than with the effects of the stroke. For my
balance issue we can’t do much, if anything, but for my leg (the
muscle fires multiple times when it should fire only one time per step
– they want to give me Botox. I told the doc, that I am fine when we
start the Botox therapy first in my face and remove the wrinkles. I did
not tell him or Navi that I should go all the way and make some extra
changes so I become the Ken guy (from Barbie and Ken) I always
wanted to be… Hmm , well I think Botox alone will not do the job, I
need implants on my butt, cheeks a nose job and some work on my
chin and not to forget a removal of stroke fat, give me a six pack, etc.).
Well I read more about Botox and how they want to use it … I decided
not to start with my face first, but do what the doc says and put Botox
near or in my muscle to put him “Out of Order”. Once done my
walking should look really good, and if not, in 3 month the effect of
Botox is gone. According to the internet there are in fact no side
effects.
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Also I stopped the medicine against seizures and for migraine
prevention, it turned out that the medication I took was marked to
have a side effect. The FDA was requiring the pharmacists to add a
flyer to the meds and a consultation with an actual pharmacist. What
was the recorded possible side effect? Depression, suicidal thoughts,
etc. Ahemmm, No, Nada, Nein, I deal with the stroke (bad enough), I
do not deal with possible suicidal thoughts, sorry, it is frustrating
anyway and having a chance that these frustrating thoughts are
amplified via my meds – sorry, not for me.
NOTE: These meds have a positive effect and they are good for many
people, but I want to be in charge of it, I want to be in charge of my
wellbeing as much as I can. I am good without the meds and I will
continue without them till I am forced otherwise.
Well I do not want to end this on a sour note … I am happy and
grateful with where I am today and what I achieved, not just over the
last 12 month …. So you know the life expectancy was 42 in the 19
hundred. We are now at almost 80 – not bad for just 100 years
difference. All, be happy of where you are today, live life to the fullest
– while vacation is cool, working is cool as well. Just enjoy and be
happy for everything you get and give, see and feel.
Last, but not least … I do not want to forget to thank all the people
who helped me to be where I am today. THANKS GUYS. Many of these
people are now as well part of medXForce my /our new adventure.
Designed to help people with similar or same impairment as I had /
have. We just got started and we do work on a freelancer / no pay
basis. But I think the ideas are great, the people are great and the
outlook is bright – for us, for the patience and for friends and family.
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
It is not Rocket Science
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
MedXForce
My Birthday
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
Check up in Germany
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
MY STROKE
AS SEEN ON FACEBOOK | My Stroke and how it was communicated via Facebook Social Media
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